Winning a Chiari Awareness Proclamation

Raising awareness for Chiari Malformation is crucial for increasing research funding, improving patient support, and educating the public about this often-misunderstood neurological condition. One way to bring attention to Chiari Malformation in your community is by obtaining a state proclamation for Chiari Malformation Awareness Month, typically observed in September. Here’s how you can request one from your governor.

Step 1: Research Your State’s Proclamation Process

Each state has its own procedure for issuing proclamations. Visit your governor’s official website and look for a section on proclamations, executive orders, or public recognitions. This page will usually outline the required steps, deadlines, and contact information for submission.

Step 2: Gather Required Information

Before submitting your request, prepare the following details:

• Purpose of the Proclamation: Explain the significance of Chiari Malformation Awareness Month and why the proclamation is necessary.

• Suggested Proclamation Wording: Some states require you to provide a draft, while others may have a set template.

• Supporting Data: Include statistics, patient stories, and advocacy group endorsements to emphasize the impact of Chiari Malformation.

Step 3: Draft a Formal Request Letter

Your letter should be professional and concise. Here’s a general format:

[Your Name]

[Your Address]

[City, State, ZIP Code]

[Your Email]

[Your Phone Number]

[Date]

Office of the Governor

[Governor’s Name]

[State Capitol Address]

[City, State, ZIP Code]

Subject: Request for Chiari Malformation Awareness Month Proclamation

Dear Governor [Last Name],

I am writing to respectfully request that you proclaim September as Chiari Malformation Awareness Month in [State]. Chiari Malformation is a serious neurological disorder affecting approximately 1 in 1,000 people, yet it remains widely underdiagnosed. By recognizing this awareness month, we can help educate the public, support affected families, and encourage further research into treatment options.

Attached, you will find a proposed proclamation text along with supporting information from medical experts and advocacy organizations. This recognition would mean a great deal to individuals and families living with Chiari Malformation in our state.

Thank you for your time and consideration. I would be happy to provide any additional information or participate in any events related to this proclamation. I look forward to your response.

Sincerely,

[Your Name]

[Your Affiliation or Organization (if applicable)]

Step 4: Submit Your Request

Depending on your state’s process, you may need to submit your request via email, an online form, or traditional mail. Be sure to follow all stated guidelines and deadlines.

Step 5: Follow Up

Governors receive numerous proclamation requests, so be proactive in following up. If you do not receive a response within a few weeks, call the governor’s office to check on the status of your request.

Step 6: Promote the Proclamation

If your request is approved, use this opportunity to raise awareness:

• Organize local events or educational sessions.

• Share the proclamation on social media and local news outlets.

• Partner with Chiari Malformation advocacy groups to amplify the message.

Conclusion

Securing a proclamation for Chiari Malformation Awareness Month is a powerful way to bring attention to this condition and support those affected. By following these steps and remaining persistent, you can help make a lasting impact in your state.